Behavior Analysis Center for Autism - BACA

BACA provides ABA therapy to help children with autism.

Equity

Advancing Autism Services: Our Commitment to Public Policy

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Written by Dr. Ashley Williams, Ph.D., LABA, BCBA-D, Vice President

National Social Justice Day is a time to reflect on the progress made in creating a more equitable and inclusive society. At LEARN Behavioral, this commitment goes beyond the confines of our therapy rooms; it extends into the heart of public policy advocacy. Our dedication to social justice is evident through our active involvement in various organizations and our continuous efforts to champion policies that support the autism community.

1. Advocating for Autism Services Nationwide

LEARN Behavioral is proud to be an active member of the Council for Autism Service Providers (CASP). Our leadership team actively participates as CASP Special Advocacy Group Leaders in 11 states where LEARN Behavioral operates. This engagement allows us to contribute firsthand to the shaping of policies that impact individuals with autism and their families. Additionally, our membership in the National Coalition for Access to Autism Services (NCAAS) underscores our commitment to addressing state and federal barriers to autism services. By collaborating with like-minded organizations, we strive to create a unified voice advocating for positive change on a broader scale.

2. Advancing Autism Equity Through State Organizations

At LEARN Behavioral, we understand the importance of grassroots efforts in promoting social justice. Our active involvement in local trade and professional organizations, including CalABA, BABAT, WAPA, ORABA, MAC, MIBAP, reflects our dedication to the larger behavior analytic community. Through volunteering and membership in these organizations, we aim to contribute to the development of equitable services for the diverse communities we serve. We believe that fostering connections within the behavioral community is crucial to creating a more inclusive and supportive environment for all.

3. Leading National Advocacy Efforts for Autism Policy Reform

LEARN Behavioral is fortunate to have resident experts in public policy who actively contribute to the advancement of the autism community. LEARN leaders have published peer-reviewed journal articles on public policy, presented at local and national conferences, and provided numerous testimonies advocating for access to care. Our chief clinical officer, Dr. Hanna Rue, is a beacon of leadership in this regard. Her participation in NCAAS’s “day on the hill” in Washington, D.C., exemplifies our commitment to effecting change at the highest levels. By engaging with House and Senate offices, we strive to influence initiatives that positively impact the autism community on a national scale.

4. LEARN Advocacy Network

The LEARN Advocacy Network, led by Dr. Rebecca Thompson, is a vital part of LEARN Behavioral’s public policy efforts, providing a monthly meeting ground for leaders from each state. Driving our advocacy initiatives, this collaborative team engages in meaningful discussions, sharing insights, and staying abreast of the latest developments in public policy. The network serves as a platform where LEARN Behavioral leaders exchange information, ensuring a well-coordinated and informed approach to navigating the complex landscape of policy initiatives.

As we observe National Social Justice Day, it is imperative to recognize the multifaceted approach LEARN Behavioral takes to contribute to a more just and equitable society. Through active participation in national and state organizations, as well as championing public policy initiatives, we are dedicated to making a lasting impact. Our commitment to social justice extends beyond our therapeutic interventions, reflecting our belief in the power of advocacy and policy to create positive change for individuals with autism and their families.

Structural Racism and its Impact on ABA: Disparities in Diagnosis and Treatment

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LEARN is committed to fostering a culture that embraces what makes us each unique—be it race, ethnicity, gender/gender identity, sexual orientation, religion, national origin, disabilities/abilities, or socioeconomic background. LEARN aims to acknowledge the lived experiences and diversity of perspectives of our staff and welcomes our teammates to share their stories to help foster conversations about diversity, equity, and inclusion in our communities.

By: Jasmine White, M.S., BCBA, Behavioral Concepts (BCI)

Today, the topics of diversity, equity, inclusion, and equality are at the forefront of many organizations. The long-standing impact of structural racism and its influence on society can no longer be disregarded. People of all creeds are speaking out against injustices and the need to promote inclusion. The dialogues on disparities have led me to reflect on the field of applied behavior analysis (ABA) and the community which it serves. To what extent has structural racism impacted ABA as a practice? Are ABA practitioners able to identify biases within the field? What is the impact on the provision of services? How does it influence diagnosis? The literature on structural racism has shown that even the most well-intended person can possess biases, we are not immune. Therefore, it is our time as a community to gain an understanding of how structural racism has affected the field of ABA.  

Here at LEARN, it is our goal to contribute to a brighter future for all, which means bringing to light sensitive topics that are impacting the communities we serve. While this may be an uncomfortable conversation, it is needed for the development of cultural humility in ABA practice. LEARN’s focus is twofold, call attention to and create a constructive conversation around disparities in diagnosis and treatment related to diversity, equity, and inclusion. As an organization that serves a diverse population, it is our responsibility to bring attention to the disparities experienced by those we serve and to be a part of the solution towards lasting change. 

Ethnicity is known as belonging to a specific racial, national, or cultural group and observance of that group’s customs, beliefs, and or language. Depending on ethnicity, one may have a life exposed to more inequalities. For racial and ethnic minorities in the United States, these inequalities include health disparities, such as higher rates of chronic disease, lower life expectancy, and decreased quality of life compared to the rates among non-ethnic minorities.

Ethnicity also has a direct impact on how early autism is identified, evaluated, and diagnosed. Research shows that not only do Black and Latino children with autism spectrum disorder (ASD) receive their diagnosis and start intervention at an older age than White children with ASD, but they also less frequently receive evidence-based interventions. For Black and Latino families, this directly impacts service opportunities, outcomes, and quality of life. According to the Center for Disease Control, studies have shown that implicit bias, lack of access to healthcare services, and non-English primary language are potential barriers to the identification of children with ASD. The research established that Black and Latino children receiving ABA services were more likely to score lower on caregiver reports of health care quality than their White counterparts, including areas of access to care, referral frequency, number of service hours, and proportion of unmet service needs.  

As a community, we must investigate ways to expand access and resources to those who so desperately need services. Identify areas of structural racism and work to reduce and eliminate them from ABA practice. Train our practitioners to identify and bracket implicit biases. Find communication methods so that all families can have a voice regardless of the primary language spoken. Explore ways to have open and honest networks of communication so that we can continue to have conversations that evoke change. Here at LEARN, we hope to be a part of the solution to these disparities so that we may create an environment where there is equity in access for those we serve.  

Discover more about LEARN Behavioral’s Diversity, Equity, and Inclusion initiatives. Let us find ways to work together to increase awareness and improve access to the communities we serve. Together, we can achieve more.

LEARN pledges to create a community centered around trust, respect, tolerance, and empathy. Read more about LEARN’s DEI journey in our 2021-22 DEI Annual Report and find out how we are investing in our clinicians’ cultural competence and increasing the diversity of our clinical team. Together, we’re better.

Jasmine is a BCBA and has worked with BCI for four years. She recently graduated Magna Cum Laude with a Master of Science in ABA from Bay Path University in Longmeadow, Massachusetts. Jasmine is currently conducting her thesis on Implicit Bias in ABA and is looking forward to expanding multiculturalism research in the field.